“But listen to me. For one moment
quit being sad. Hear blessings
dropping their blossoms
In a few days, the EB Awareness Event starts. It’s a chance to tell people about Epidermolysis Bullosa, a rare disease that affects 1 in 50,000 children born throughout the world as a result of a genetic disorder. It varies in severity among its sufferers. It is characterized by a defect between the anchoring of the skin between the epidermis (top layer of skin) and the dermis (second layer). People who suffer from EB suffer from skin fragility, blistering and constant pain. A group of designers and bloggers in SL are putting on the EB Awareness Event with proceeds going to DEBRA of America, a national research charity group dedicated to curing EB. Thanks to Cerise Emor for putting this event on. Cerise volunteers to help children with this condition in RL. Designers are all donating part of their sales proceeds.
Hannah Daviau is one such designer, a married mother of one in Denmark who makes fashions in SL from mesh templates, adding her own special touches. Hannah is donating 75% of all her sales to DEBRA of America to bring awareness about this condition. Her generous offer is much appreciated, and I am thrilled to show her gorgeous dress, shoes and necklace as a darling ensemble. Hannah is willing to share her blessings as an artist with this worthy cause and to support Cerise as well in her wonderful work. Please honor her by buying and wearing her great work.
I wrote about EB last year and am quoting it here if you want to hear a personal story about why I am glad to support this event:
I agreed to blog for the EB Awareness event because I knew a boy in my high school when I was growing up who had this devastating disease. Rolled from classroom to classroom in a wheelchair by a special education teacher, Adam was one of the best students in my Advanced Geometry class. His skin was friable and ruddy. His face looked raw and painfully exposed with scabs and irritations all over his face and head. His hands and feet were stumps. He resembled an old man more than a child.
No one picked on Adam—that would have been too overt. He was simply invisible. He could not participate in regular school activities; he was rolled around between classes to avoid getting hurt by the boisterous physicality of high school kids. He was welcomed by us geeks in Advanced Geometry; we understood being invisible. When he participated in class—raised his hand or laughed with us—we were heartened. (He was really cute when he laughed.) That year in that class was solely remarkable to me for his presence.
I am sure Adam has died. His skin was very fragile; he was truly debilitated physically, though clearly not intellectually or emotionally. He was a normal boy in a body that failed to contain him due to a genetic anomaly that was no one’s fault. I am glad he got the opportunity to join us in that class and in high school. We were the better for having him in our company.
Sawsan Secretspy is offering this gorgeous skin at the Boho Culture Fair. I have to say, without fail when someone sees me in SL with one of her skins, they are blown away by how beautiful I look. There is something sexy and sensuous about her skins. Perhaps it’s the subtlety of the makeup colors or the beautiful eyes or the sexy blush. MissAllSunday Lemon’s lovely hair for the Sun Market, a little mini-event at Fallen Gods, is a gorgeous casual look with a wonderful braid as a hairband. Get it!
Hands: Slink Avatar Enhancement Hands – Casual by Siddean Munro for Slink
Poses by Valencia Southard for Marukin